The Challenge of Complex (and Perplexing) Presentations in Autism.
This is the title of a new book I will be writing, along with colleagues, and which will include real life stories from individuals (and their families) who have been affected by either not having their Autism recognised or being misdiagnosed. It has been commissioned by Jessica Kingsley Publishers and will hopefully be complete by June 2022. young people arrive in inpatient services without...Learn More
PDA Research News
As many people who have attended the various PDA conferences over the last couple of years may know, we as a team, decided back in 2016 to collate all of the information we collect as part of our assessment process, and analyse what we found. We realised we were in a very fortunate position; we were seeing a large number of children and young people who fitted the PDA profile, and this seemed...Learn More
The need for better diagnoses
Adult diagnosis, mis-diagnosis, and experience of parenting for autistic women Over the years I have spent a great deal of my working life as part of a multi-disciplinary team assessing both children and adults for Autism. When I first started work in the NHS in 2001, we saw very few girls or young women in our service. I have written before about my shock, when over ten years later, whilst...Learn More
The need to better understand how autism presents
A new year dawns and it is always a good time to reflect upon the previous year. At Help for Psychology (in common with many other teams) we have seen a huge increase in the number of very complex young people we have been asked to work with, and distressing reports from parents about their struggle to access appropriate and timely services for both children and young adults.Some of the...Learn More
If at first you don’t succeed …
The latest article within this series hasn’t been written by Dr Judy Eaton, but instead by Kaylee Weaver, one of our very experienced Higher Assistant Psychologist. Here, Kaylee shares her experience of the challenges we as a team face week in week out when assessing children with Extreme (also known as Pathological) Demand Avoidance. INTRODUCTION Presenting...Learn More
Our current thinking on PDA
As many people may be aware, there has been a great deal of interest in, and controversy around, PDA. What it is, what it should be called, and whether it actually exists. As it is now over thirty years since the original concept of PDA was introduced by Elizabeth Newson and her colleagues, and how the thinking around Autism has moved on significantly during this time, it is very...Learn More
Living in a ‘five minute bubble’ – the impact of poor executive functioning.
Human babies are amongst the least developed, in terms of their ability to manage independently, of all mammals. They are born with only the primitive parts of their brain fully functioning, with the majority of brain development taking place throughout childhood (hence the soft spot or fontanelle at the top of a baby’s head which allows its brain to grow significantly during the first year...Learn More
The importance of correct early intervention for children with Autism
Like most people I have been following the recent news stories about young people with autism and the PDA profile carefully. The first case to be highlighted was that of Bethany, a seventeen year old girl with autism and the PDA profile. From what I can gather, Bethany’s family had tried (unsuccessfully) for years to access the most appropriate support for her. By reaching out and...Learn More
Watch this space …
In the course of my clinical work, I meet with many parents who are seeking an explanation for their child’s difficulties. I am also privileged to have been allowed to join a number of closed Facebook groups where parents share their experiences of bringing up children with Autism and PDA. Without exception, these parents have been strong, resilient and determined to achieve the best possible...Learn More