Back to school for children with PDA…four years on
This blog is another ‘four years on update’ to a previous blog, as I have realised (a) how much has changed for families since the start of the COVID-19 pandemic and (b) how in the last four years, little has changed in terms of universal acceptance of the PDA profile. It is September again and parents all over the country have been facing the start of another new school year. For some...Learn More
Autism, anxiety and the impact upon parents … four years on
This article is an update of our original article written in 2017 – long before we, and our children, were faced with the prospect of COVID 19 and the associated disruptions to school and everyday life. I am talking about about Autism and anxiety, an issue which has taken on a new meaning in the last eighteen months. Previous research suggested that up to 85% of autistic individuals will...Learn More
Online assessments – 17 months on
In March 2020, when the first lockdown to try and manage the spread of the COVID-19 virus began, many Autism assessment teams across the country were already experiencing a high number of referrals for assessment, and consequently families were experiencing long and stressful delays in getting a diagnosis and the support that they had hoped for. Even before COVID, waiting lists had been...Learn More
The Challenge of Complex (and Perplexing) Presentations in Autism.
This is the title of a new book I will be writing, along with colleagues, and which will include real life stories from individuals (and their families) who have been affected by either not having their Autism recognised or being misdiagnosed. It has been commissioned by Jessica Kingsley Publishers and will hopefully be complete by June 2022. young people arrive in inpatient services without...Learn More
PDA Research News
As many people who have attended the various PDA conferences over the last couple of years may know, we as a team, decided back in 2016 to collate all of the information we collect as part of our assessment process, and analyse what we found. We realised we were in a very fortunate position; we were seeing a large number of children and young people who fitted the PDA profile, and this seemed...Learn More
The need for better diagnoses
Adult diagnosis, mis-diagnosis, and experience of parenting for autistic women Over the years I have spent a great deal of my working life as part of a multi-disciplinary team assessing both children and adults for Autism. When I first started work in the NHS in 2001, we saw very few girls or young women in our service. I have written before about my shock, when over ten years later, whilst...Learn More
The benefits of online ASD assessments
Due to many weeks of lockdown, caused by the Covid-19 pandemic, we have been reviewing different ways of carrying out autism assessments. This month we carried out our first assessment where every aspect was done, securely, online. What follows is an explanation about the benefits of conducting assessments online, particularly with children who are reluctant to leave the safety of their home....Learn More
Reflections on lockdown, and new ways of assessing
Like many clinical teams who have traditionally been involved in face to face interaction with people, the last two months have been a challenge for us. Factoring in this alongside lockdown and restrictions on travel have meant we have needed to work quickly to find new ways of supporting families.We have also seen a rise in the number of parents who have approached us because their child has...Learn More
The need to better understand how autism presents
A new year dawns and it is always a good time to reflect upon the previous year. At Help for Psychology (in common with many other teams) we have seen a huge increase in the number of very complex young people we have been asked to work with, and distressing reports from parents about their struggle to access appropriate and timely services for both children and young adults.Some of the...Learn More